NCI Meeting on Pediatric Cancer Drug Development

Jenny Cartwright shared this message from the Children's Cause Cancer Advocacy Group Special Announcement: The National Cancer Institute will hold a meeting about pediatric cancer drug development Friday, Feb. 21 Dear Childhood Cancer Advocate, There will be a meeting next week at the National Cancer Institute (NCI) dedicated to pediatric cancer drug development. The NCI…
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Nanobiotix outlines development plan for NBTXR3 in soft tissue sarcoma

Nanobiotix (Euronext: NANO), a French nanomedicine company focused on cancer therapy, has announced today its development plan for the CE marking of NBTXR3, the first product from the NanoXray pipeline. The positive results from the pilot phase of NBTXR3 in patients with advanced soft tissue sarcoma (STS), allow Nanobiotix to finalize and to announce its…
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Recent Papers on Rhabdomyosarcoma – 11 February 2014

From Google Scholar Alerts Please note that some are abstracts requiring subscriptions or purchase of the full article, others provide a more comprehensive view of the paper. Repeated resection for recurrent pulmonary metastases I Capov, J Doležel, P Vlček, V Jedlička, A Peštál… - Rozhledy v chirurgii: …, 2013 ... There was synovialosarcoma, osteosarcoma, rhabdomyosarcoma,…
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What treatment approaches ‘on the fringe’ are worth further, independent validation (e.g., HAMLET?)

We are starting a new post area – one that promotes discussion rather than just provide information. This should be a lively discussion. Researchers and clinicians please offer your comments. For those unfamiliar with HAMLET, as described on the Lund University website: HAMLET, a new concept for cancer therapy Some years ago, serendipity allowed us…
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Could reducing the delay in diagnosis result in fewer metastatic cases at diagnosis?

We are starting a new post area - one that promotes discussion rather than just provide information. To begin, let's take the question "Could reducing the delay in diagnosis result in fewer metastatic cases at diagnosis?" The premise of our 'Presentation' booklet is just that. If we can shorten the time to diagnosis - if…
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Bio-Specimen Donation Initiative Webinar Video

A video screencast of our Bio-Specimen Donation Initiative webinar is available for those Advocacy Group Members who were not able to join us. Due to pre-publication restrictions on some of the information, this video is not available to the public or general subscribers to this site. Group Members can view the video on the Meetings…
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Bio-Specimen Donations Initiative Announced

On Sunday, February 9th, Focus On Rhabdo announced a new initiative that should significantly speed up the search for a means to make rhabdomyosarcoma a universally survivable disease. This effort was initiated by the families of RMS cancer patients because many patients and their families are unaware of the need to donate RMS tissue for…
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Rare Disease Day – Feb 28, 2014

February 28th has been designated as Rare Disease Day, a day where patient organizations around the world unite to promote awareness of the challenges, hopes and needs of those living with rare diseases. For 2014, the focus is on caregiving, and the global theme is “Join Together for Better Care.” As an advocacy organization supporting…
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