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The New FocusOnRhabdo Website is Live

We’ve turned on our new website. Please take a few minutes to review the material and PLEASE let me know if there is any information that was left out. If you know of any resource that is not listed, let’s list it. If you know of any foundation or...

A Growing List of Signees

As parents, grandparents, family members, friends and patients of a rare form of cancer we need to actively advocate for ourselves. A letter was recently sent by Dr. Sharon Hammond of Summer’s Way Foundation to the Biden Moonshot Initiative Scientific Research...

New tools used to identify childhood cancer genes

New tools used to identify childhood cancer genes UT SOUTHWESTERN MEDICAL CENTER DALLAS – July 3, 2018 – Click Here for Original Using a new computational strategy, researchers at UT Southwestern Medical Center have identified 29 genetic changes that can...