Proposed Mission Statement (Revised 12/21/2013) - open for discussion and changes. Please comment below. Registered users only.

The mission of this group (Focus On Rhabdo) is multi-fold yet narrow focused:

Through the formation of a community-anchored, multi-disciplinary consortium of “Rhabdo Activists” – community members, scientists and clinicians – we will collaborate and leverage this group’s muscle – both brains and brawn – to methodically work towards:

  1. Curing all rhabdo cases by finding means to regress existing tumors and prevent new recurrences or metastases.
  2. Developing treatments with few or no long-term side effects.
  3. Raising awareness in order to eliminate delayed diagnosis and “whoops” operations, and to identify potential risk factors.